Over time, work on learning as much as you can about lupus, autoimmune disease, chronic illness and what you can do to manage these things as effectively as possible.
- don't be afraid to ask questions - when your health is on the line, there are no stupid questions.
- be aware, within reason, but don't focus on all the 'scary' information that is out there (lupus differs in its severity and course from one person to the next so much of the 'scary' stuff you read may never apply to you). Instead, focus on those things that you have some control over (like the suggestions for living well with lupus on this website).
- check out the rest of this website and the links to other reliable information provided
- read some of the books found on the 'Books' page of this website
- widen your search to the resources below (and beyond) to find the information you require to live well with lupus
- Merck Manual - Home Edition - find the health information you need in language specifically designed for members of the general public. Just enter the medical term you would like to have more information about. For example "lupus"or "atherosclerosis", etc.
OTHER ASSOCIATIONS, SOCIETIES, FOUNDATIONS
- Lupus Canada
- Lupus Foundation of America
- Lupus Research Institute(American)
- Research Canada
- Canadian Arthritis Society
- Canadian Rheumatology Association
- American College of Rheumatology
- Canadian Network for Improved Outcomes in Systemic Lupus Erythematosus
- Arthritis Research Centre of Canada
- Canadian Institutes of Health Research
- Rebecca MacDonald Centre for Arthritis and Autoimmune Disease at Mount Sinai Hospital
- American Autoimmune Related Disease Association
- Osteoporosis Canada
- Falls Prevention
- Public Health Agency of Canada - Falls Prevention Resources
- Public Health Agency of Canada - A Best Practices Guide for the Prevention of Falls Among Seniors Living in the Community
- Finding Balance - an Alberta website dedicated to helping seniors prevent a fall before it happens so they can stay active and independent.
- Alberta Health Services Falls Prevention Handouts: The Facts On Falls For Seniors (English) - other languages / Be Falls Smart - A Million Messages
- Canadian Pain Coalition
- Heart and Stroke Foundation of Alberta, NWT and Nunavut
- Canadian Heart and Stroke Foundation
- Canadian Association of Cardiac Rehabilitation (CACR)
- American Heart Association
- Canadian Diabetes Association
- The Kidney Foundation of Canada
- The Lung Association of Alberta and NWT
- Canadian Cancer Society
- Canadian Liver Foundation
- Canadian Public Health Association (CPHA)
Check out the on-line searchable library holdings:
- Grande Prairie Public Library
- Edmonton Public Library
- Red Deer Public Library
- Calgary Public Library
- Medicine Hat Public Library
- Lethbridge Public Library
Use Google to find libraries in other communities in Alberta.
ON-LINE MEDICAL LITERATURE SEARCH
- Health Information Network - on-line professional health information search portal
- PubMed Central Canada - is a free digital archive of full-text, peer-reviewed health and life sciences literature based on PubMed Central, the archive developed by the US National Library of Medicine. The search interface allows anyone to browse, search and download articles.
- The Cochrane Library - an on-line database of scientific literature to support health care decision making.
MEDICAL ARTICLES / JOURNALS
- PubMed - Medical Journals Online
- Canadian Medical Association Journal
- New England Journal of Medicine
- The Journal of the American Medical Association (JAMA)
- The Lancet
- British Medical Journal
- Circulation - American Heart Association
- Journal of Rheumatology
- British Journal of Rheumatology - Rheumatology Online
- Arthritis and Rheumatism
- Annals of the Rheumatic Diseases
- Current Opinion in Rheumatology