This website has been reviewed for accuracy by the LSA to the best of our ability with the aim of providing information about lupus, healthy lifestyles for living with lupus, and the health and community services available in Alberta. The LSA assumes no responsibility or liability arising from the use of information contained herein.
Further, it should be noted that this information is general in nature, and may or may not apply to your particular circumstances. This web site should not be used to replace the services of a health professional. Seek appropriate medical advice from a physician or other qualified health professional with respect to your particular circumstances prior to acting upon any information available on the LSA website.
Any purchases and donations made to Lupus Society of Alberta are subject to no returns/exchanges or refunds.
The Lupus Society of Alberta recognizes and respects an individual's right to confidentiality and pledges to protect their privacy. We believe that transparency and accountability are essential to our success. We are a member of Imagine Canada and the Ethical Code Program.
The Ethical Fundraising and Financial Accountability Code provide a set of standards for charitable organizations to manage and report their financial affairs responsibly. By adhering to these standards, we are complying with generally accepted practices for soliciting and managing donor dollars. This is important because our supporters are entitled to transparency and the greatest impact possible for their investment in us.
The Society will continue to maintain the highest ethical standards in the protection of donor interests and in our fundraising and financial best practices.
I. Introduction: All personal information collected by The Lupus Society of Alberta will be used only for defined purposes that are explained in advance to the individual, and that use or disclosure for any other purposes will only be undertaken after obtaining informed consent.
a) The Lupus Society of Alberta does not share, loan, rent or sell donor lists or personal information to other organizations for the purpose of fund raising.
b) With the consent of an individual his/her name may be printed for purposes of donor recognition.
c) The Society collects personal information about an individual only if it is volunteered in a survey and/or request for information and/or request to be added as a member, or to a mailing list. We use this information to respond to requests or questions. All information is kept confidential.
d) The Society maintains records of all contributions. All information is kept private and confidential, stored in a secure location and accessible only by authorized staff.
e) From time to time the Society may use e-mail as a way to communicate with our existing customers and other interested individuals. The Society does not send 'spam' (unsolicited marketing e-mail).
III. The 10 Principles for the Protection of Personal InformationThe Lupus Society of Alberta has adopted the following principles to ensure the safekeeping and integrity of the information collected from donors, event participants, members, clients, volunteers and staff. The Personal Information Protection and Electronic Documents ActPIPEDA is based on 10 principles for the protection of personal information summarized as follows:
Principle 1 - Accountability
The Lupus Society of Alberta (the Society) is responsible for personal information under its control and has designated an individual or individuals who are accountable for the organization's compliance with the principles.
Principle 2 - Identifying Purposes
The purposes for which personal information is collected shall be identified by the Society at or before the time the information is collected.
Principle 3 - Consent
The knowledge and consent of the individual are required for the collection, use, or disclosure of personal information, except where inappropriate. Subject to contractual or legal restrictions and reasonable notice consent may be withdrawn at any time.
Principle 4 - Limiting Collection
The collection of personal information shall be limited to that which is necessary for the purposes identified by the Society. Information shall be collected by fair and lawful means.
Principle 5 - Limiting Use, Disclosure, and Retention
Personal information shall not be used or disclosed for purposes other than those for which it was collected, except with the consent of the individual or as required by law. Personal information shall be retained only as long as necessary for the fulfillment of those purposes.
Principle 6 - Accuracy
Personal information shall be as accurate, complete, and up-to-date as is necessary for the purposes for which it is to be used.
Principle 7 - Safeguards
Personal information shall be protected by security afeguards appropriate to the sensitivity of the information. Methods of protection shall include:
• locked filing cabinets and restricted access to offices
• technological measures such as passwords and protection of data
• organizational measures such as restricting access to personal information
Principle 8 - Openness
The Society shall make readily available to individuals specific information about its policies and practices relating to the management of personal information.
Principle 9 - Individual Access
Upon request, an individual shall be informed of the existence, use, and disclosure of his or her personal information and shall be given access to that information. An individual shall be able to challenge the accuracy and completeness of the information and have it amended as appropriate. Note: In certain situations, an organization may not be able to provide access to all the personal information it holds about an individual. Exceptions to the access requirement should be limited and specific. The reasons for denying access should be provided to the individual upon request. Exceptions may include information that is prohibitively costly to provide, information that contains references to other individuals, information that cannot be disclosed for legal, security, or commercial proprietary reasons, and information that is subject to solicitor-client or litigation privilege.
Principle 10 - Challenging Compliance
An individual shall be able to address a challenge concerning compliance with the above principles to the designated individual or individuals accountable for the Society's compliance.